Child with Heart Born Outside Ribs Seeks Treatment

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She’s traveled from Russia to America seeking treatment. And now she’s come to Hollywood seeking treatment for her very special conditions.

Virsaviya Borun has a heart outside her ribs, barely protected by a thin layer of skin, quite visible to the naked eye like a sort of strange uterus. She has a number of health issues, including high blood pressure. She suffers directly from thoraco-abdominal syndrome or Pantalogy of Cantrell,a rare condition that occurs in one of every million persons. Amazingly, she still dances and does the splits despite the condition.

Native to Russia, Virsaviya has had to move to the United States to seek treatment for her condition. A hospital in Boston refused to treat her on the grounds that her blood pressure was far too high. She has now moved to Hollywood in order to try for treatment there. Her journey can be found on her mother’s Instagram.